About of :The Georgian Foundation for Genetic and Rare Diseases was established in 2009 with the idea of improving the quality of life for patients with rare diseases. The foundation brings together doctors, scientists, patients, and their guardians. Its main activities include advocating for treatment accessibility and integrating Georgian doctors and patients into leading international organizations working on rare diseases. The foundation has expanded its scope to become a professional association actively involved in policy, legislation, education, treatment, diagnostics, care, registry management, and guideline creation for rare diseases. It also participates in national and international clinical and social research and represents Georgia in numerous European and global organizations focused on rare diseases.
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